Interactive ADPKD Patient Route Map

In May 2018, the European ADPKD Forum (EAF), an independent, international group of expert doctors and patient advocates, and PKD International, the international ADPKD patient

support group alliance, published an interactive ADPKD Patient Route Map. The Route Map answers all important questions about ADPKD and contains valuable checklists and recommendations on topics such as genetics, family planning and mental health. It can be downloaded free of charge via the following link:

Interactive ADPKD Patient Route Map ENGLISH

It is recommended to open the Route Map with Adobe Acrobat Reader to be able to use all functions.

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SwissPKD gathers comprehensive information about the disease, its effects and its treatment options, as well as fostering research with the goal of curing the disease.

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Interactive ADPKD Patient Route Map

The Route Map answers all important questions about ADPKD and contains recommendations on topics such as genetics or family planning.

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Videos of persons concerned

Life with ADPKD: Patients stories.

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